Blog Layout

Support Your Child With Disabilities — and Still Qualify for Medicaid

Cyndi Najar • April 28, 2022

If you have a child with a disability, providing for them into the future will likely stand among your top priorities. However, if you also wish to apply for Medicaid to cover your own long-term care expenses, first consider establishing a special needs trust (SNT) for your child.



This will allow you to transfer assets to support them while remaining eligible for Medicaid yourself.  The rules for participating in Medicaid, a federally funded program managed by the individual states, are stringent and complex. Applicants must demonstrate that their income and assets are below the limits set by their state before Medicaid will fund their long-term care. Anyone with more than $2,000 (in most states) in “countable assets” (generally, anything beyond their home, one automobile, and personal belongings) will not qualify.


 At the same time, applicants can’t just give their money away and expect immediate support from the program.   Congress does not want people to move into a nursing home on Monday, give all their money to their beneficiaries on Tuesday, and be eligible for Medicaid on Wednesday. To avoid this situation, any Medicaid applicant who has transferred their assets recently — in most states, “recently” means the past 60 months — will be ineligible for funding for a certain period of time. The duration of these penalty periods is determined by dividing the amount transferred by what Medicaid determines to be the average private-pay cost of a nursing home in that state.


 Special Needs Trusts to the Rescue 


The good news: Certain asset transfers are exempt from such penalties. Even after entering a nursing home, Medicaid applicants may transfer any asset to the following individuals without having to wait out a period of Medicaid ineligibility:   


  • their spouse
  • a trust for the sole benefit of a child (of any age) who is blind or permanently disabled as defined by the IRS 
  • a trust for the sole benefit of anyone under age 65 who is permanently disabled   


In other words, there is a way to set money aside for someone with permanent disabilities and still qualify for Medicaid for your own long-term care. This is possible through an SNT, which is specifically geared to support the beneficiary with disabilities, under the management of a trustee, throughout their lifetime.  (In this case, the SNT would be a “third-party SNT” because the funds come from someone other than the person with disabilities.) 


An SNT also can ensure that the individual with disabilities continues to receive any public benefits already available to them through government programs such as Medicaid and Supplemental Security Income (SSI). That is, if you were to transfer your assets directly to the person with disabilities and their resulting “countable assets” then exceeded a program’s  threshold (which is $2,000 for SSI), you may inadvertently have made them ineligible for those government programs.   Because each state is different when it comes to Medicaid, and because laws and cost projections are constantly changing, be sure to work closely with a special needs planner in your home state so that you can provide for your own care, and that of your loved one with disabilities, in the best possible way. For more information, please give me a call.

By Cyndi Najar August 21, 2024
New Title
By Cyndi Najar February 26, 2024
Our Passion
By Cyndi Najar February 23, 2024
Introduction to Charting the Lifecourse tools
By Cyndi Najar November 3, 2023
Programs and schedules
By Cyndi Najar October 30, 2023
Housing and Personal care
By Cyndi Najar October 24, 2023
Medical and History care
By Cyndi Najar July 31, 2023
Questions Every Super Parent of Special Needs Children wants Answered!
By Cyndi Najar July 26, 2023
10 Tips to enhance learning this school year 
By Cyndi Najar July 20, 2023
Let's continue to work on a family letter of intent
By Cyndi Najar May 31, 2023
All families should create a letter of intent. It provides information and details about your family when you are no longer here to provide it. I can not tell you how many times I have called my mom to get information about an illness or accident on myself, so this information is valuable for every family to have but vital for families with individuals with disabilities. I get it is a daunting task..... SO let's break it up into monthly bite size bits. One eats the elephant one bite at a time!! Month 1 1. Information about Father. A. General Information a. Full Name b. Social Security Number c. Complete Address, Phone Numbers Home and Work d. Date of Birth e. Place of Birth: city, state, country f. Fluent Languages g. Religion h. Race i. Blood Type j. Number of siblings k. ? US Citizen B. Marital Status: Current Marital Status, Date of Marriage, Place of Marriage, Number of Children from Marriage. Then add the same information for any previous marriages. C. Family: List complete names of father’s siblings and parents, For those still living list their addresses, phone numbers, and pertinent biographical information 2. Repeat step 1 for Mother 3. Your Child or Children A. General information a. Full Name and what name they like to be called. b. Numbers: Social Security, Complete Address, Phone, Height, Weight, Shoe size, and clothing size. c. More details: Gender, race, fluent language, religion, and citizenship. d. Birth: List birthday and time, and any complications. Give Birth weight and height, place of birth and City and state were raised. e. Siblings: give detailed information both geographical and emotional (closeness to individual with disability) Include details on any spouses of siblings as well. f. Other relationships: friends or family child knows and likes, provide a description of the relationship. g. Guardians: if an adult has child been declared incompetent, Named Successors, provide details for any and all guardians, h. Advocates: list the people in order who you foresee acting as advocates for your child after your death. (Speak with them) i. Trustee: indicate if you have set up a Trust for your child and provide a list of Full Names, addresses and phone numbers of all trustees. j. Representative Payee: Indicate if you have one and provide the details. k. Power or Attorney: Indicate the type and provide details of individual. l. Final Arrangements: Describe any arrangements that have been made for your child’s funeral and burial. List individuals or company to contact. Also list any payments that have been made and what is covered by those payments. If you have not made specific arrangements indicate if Burial or Cremation is preferred.
More Posts
Share by: